I’m proposing a new word for 2014


Please go to my new site http://redoable.co.uk

for the entire story!

I invented this word purely to get in the face of the originators of the word “selfie,” because the word I’m proposing doesn’t have the narcissism, self-absorption and ego.

“Selfies” originators  were then egged-on by the Oxford English Dictionary which made “selfie” the “word of the year for  2013″ which only celebrated the vacuous planet of celebrity and party-goers and its St Elmo’s fire of notoriety and does nothing to further the English language. Some forms of “Selfies” can be dangerous as people now use their mobiles/cell phones as a new form of mirror with which to measure their form of reality.

The word I’m proposing is shadowies – a picture of your shadow in various poses that leaves the “me” out of the photograph, allowing only the essence of you. It’s similar to Victorian silhouettes but with more scope for artistry all without worrying about combing your hair, or even what you wearing, or make-up, or skin imperfections.

Dependent on how the light strikes you, you can be tall or short, thin or thin-challenged. It’s the perfect anonymous portrait. You don’t have your silly duck-faced photos living on in internet eternity.

Go back into the shadows and lose yourself in the anonymity.

Here are some I took earlier.

The new Redoable


http://redoable.co.uk

Redoable construction crew

Redoable construction crew

This is the new and improved site – a gift from my Amoret. There still will be the exact same postings on here as on the new site – mirrored if you will. But the new site is awesome. Please, sign up for the site http://redoable.co.uk if you are one of my subscribers.

 

 

Aphasia


After month of induced aphasia awareness (as ordered by the US Congress) I’m convinced I am never going to be cured of aphasia.  It leaves me feeling like this Eric Johanssen photo.

thank you facefistcopyright-2011-erik-johansson-all-rights-reserved.jpg

thank you facefistcopyright-2011-erik-johansson-all-rights-reserved.jpg

Aphasia: Not with a mouse, not with a fox


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June being the month for all people to be aware of the condition known as aphasia (as ordered by the US Congress) I find that I’m getting worse, not better.

I wrote earlier about being exposed to the term asphasia (The Chronicles of Aphasia - How I discovered aphasia when all I had was trouble speaking because of a stroke).

Frankly it’s a big job touting the world for people to understand the term and the condition that has so many variables. The best example is the mantra that aphasia is a loss of language, not a loss of intellect.

I keep telling myself that, yet day by day, I can feel what little communications I have slipping away. I find it harder and harder to pronounce words – to ‘mouth’ words – get my tongue around them and get them out. I used to have problems thinking of the words, but that’s better. Given time I can find the words I need.

I have had three years of practice to build on the fried brain residue, to practice getting better, only to find it’s getting worse. Once again, the experts lied when they said I would improve my speech by putting in the hours of rehab. And yet “scientists” say the brain re-wires itself given time and exercise. Mine, apparently, hasn’t caught up with science.

But still I haven’t given up. Recently I had my grandson Arthurarthur to stay overnight and I found that he was entertained by my reading Green Eggs and Ham, by Dr Seuss.

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I remember reading the story to my daughter Katie (long ago, Before Stroke) and she loved it when I went fast, increasing the frustration and mild anger through the words to the ever-present question posed by Sam-I-Am:

I do not like them in a box.
I do not like them with a fox
I do not like them in a house
I do not like them with a mouse
I do not like them here or there.
I do not like them anywhere.
I do not like green eggs and ham.
I do not like them, Sam-I-am.

(And I maintain that I’ve not lost my intellect.)

I sailed through the words, Post Stroke. In fact I was so enamoured by my voice during the chorus, I got louder and louder (I was really getting into the method acting), that Amoret shushed me from the patio lest the neighbours the other side of the brick wall think we were arguing.

The neighbours, Mr and Mrs Homo Neanderthalensis, never let on that I would not have it with mouse or a fox, nor Amoret’s strange recipes.

Truthfully, I was knocked back by the admonition.

I was really feeling the power of my voice. For the first time I felt free of the tyranny of aphasia.

Thinking about that reading again, it wasn’t that the pronunciation was all that clear (I have aphasia remember), but the timbre, pitch (psychoacoustics) and cadence gave me freedom to wildly express myself much the same as Brian Blessed.

And Arthur was impressed.

I plan to read more Seuss, aloud, much the same way I did when began this rehabilitation. I hope to get that feeling of freedom of communication back – and who cares what the neighbours think.

Blogging about a stroke – it’s not research, it’s therapy


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Ever since I was turned down by researchers for Botox to the hands, I keep running into other ways I could be involved in stroke-related research.

I got a message on my blog wondering if I’d like share my blog with a study by Speech and Language Therapists doing a Masters project at City University London.

Is a bear Catholic?

“I am contacting you because we wish to analyse your blog in our theses. The name of the project is

Blogtalk: the impact of aphasia on people’s lives.”

Well have I got something to say about impact of aphasia on people’s lives. And it’s all right here in my book: What if you spend your whole life speaking and writing and woke up to find it was gone? (Special offer, limited time only, exclusive for readers of this blog – £9.99 plus postage of £4.95, call it £15 quid)

Seriously, there is no charge, as you know if you’ve been following my misadventures. But it illustrates how such an event will take away even the ability to earn money. And that’s just the beginning.

I’m putting my brain to work in search of a cure for fatigue


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I got the why’s of a stroke affecting the brain and cutting off signals to the right side of my body – there’s a lot of learning to do after a stroke. But I thought you could, over time, rewire the brain – train it to do the same things it used to.

Or least that’s what I was told: “You’ll be back ‘normal’ after some rehab” from nurses and physios and consultants. It’s a litany people who have strokes are told. They are all lies – well-intentioned lies, but lies all the same.

Like I said at the beginning of this blog adventure, strokes are a bespoke affliction – it’s a one-off designed just for you. It’s kind of like ordering from a Chinese restaurant in that you can one from column A, and three from column B, or the other way around, or different amounts. Not that you have much of a choice during a stroke – the end result depends on how many brain cells die during a stroke from not getting life-sustaining oxygen. That result is your Chinese takeaway order. It includes death.

Coming up on year three of stroke in my life and I have made some progress with what I got in my takeaway order. I can walk a straight line, and pick up a cup, and get dressed, and chop vegetables, and sort of type now (look at me blogging!). But it’s a far cry from ‘normal’. I think that’s why I’m suddenly interested in research. I think it will somehow speed up the recovery, or the very least come up with a reasonable explanation of why it is not.

I yearn for the normalcy that I used to have – to type out a story at warp speed; to drive; to speak normally; to know a day without fatigue or tiredness.

tired-eyes

They are looking for stroke survivors to take part in research on fatigue and tiredness. That sounds like my kind of research.

I can tell them about that. Since my stroke I have to take a nap about noon every day. About then I look like an extra in The Walking Dead (Zombie TV series) I am that tired. I sleep for about an hour and that revives me.

BS (Before Stroke) I would never entertain the thought of a nap as it would take valuable awake time (read creative time – photography, writing) from me. And BS, should I ever fall asleep accidentally from just being exhausted, I was a bear to be around. Now a power nap is essential to my post-stroke rehab. I shall apply for that research and they tell me:

The reason behind development of fatigue is not clear but previous research suggests that it could be due to changes within the areas of brain that control movement. In this study, we use brain stimulation, questionnaires and brain scans to gain information about the area in the brain that contribute to development of fatigue following a stroke.”

Put my brain in coach, even if it won’t cure me.Should-Animals-Be-Used-For-Medical-Research