“Strange how some charities find it hard to let service users in.”


It still just sticks in my mind like a bad dream, or toffee that gets stuck in your fillings.

“Unfortunately, not everyone can become a media volunteer because of the sheer volume people.”

All I asked for was a chance to contribute my talents to The Stroke Association – free! I wasn’t asking for pay or commission. I was just glad that my brain was functioning again (almost) although my hands were not. I wanted to contribute to the organisation that was set up to make people aware of strokes. Possibly I could contribute. If only they would talk to me.

Yet she said: “As you have not used our services.” But I had, and paid £2 for the service, and the editor came to us to ask what should be in their magazine.

She added: “due to the demand, I regret we are not able to take your request further.” Did she even read my email? Well, better yet, did she understand it?

She added: “Unfortunately, not everyone can become a media volunteer because of the sheer volume people.”

I didn’t ask to be a volunteer. I wanted to contribute.

Jo, a speech therapist who follows me, recognises something in my writing. She wrote: “Reading these blogs is the closest you can get to understanding aphasia from the inside.”

A former work colleague, Jane, who follows my writing said: “Strange how some charities find it hard to let service users in.”

Then, I found this unattributed quote:

“Happiness can be found, even in the darkest of times, if one only remembers to turn on the light.”

Now I’ve got find a 150 watt bulb.

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2 responses to ““Strange how some charities find it hard to let service users in.”

  1. Thank you for posting this. I am a first year speech therapy student and I’m currently co-leading a support group for people with aphasia. I agree with Jo and appreciate the insight you are providing into how you experience what we are learning about.

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